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Expectations of IBS patients concerning disease and healthcare providers: Results of a prospective survey among members of a French patients’ association

Abstract : Background and aims IBS patients have an impaired quality of life (QoL) and feel dissatisfaction with medical care. We aim to describe the expectations of members of the French Association of IBS patients (APSSII) concerning health care providers (HCPs) and a patients’ organization. Patients and methods From January to June 2013, APSSII members were asked to answer questionnaires on their expectations and experiences concerning IBS and HCP. Results 222/330 (67%) responded (women: 68.5%, 46.5 ± 17.7 years, disease duration: 8.8 ± 0.7 years, IBS-D 33.6%, IBS-C 26.7%, IBS-M 38.2%. IBS-SSS > 300 in 53% and HAD score > 19 in 45%). QoL impairment was correlated with disease severity and HAD score (r = −0.707 and r = −0.484, P < 0.001 respectively), but not with IBS subtype. Expectations for IBS were “improved health”, “better information on causes and treatments” (94%) and “better disease recognition” (86%). A significant gap was observed between expectations and experiences with HCPs. Better information, less isolation, recognition of the disease and a decrease in medical expenses were the main expectations for joining a patients’ organization. Conclusions French IBS patients have a severe disease with a significant psychological impact and impaired QoL in half of the patients, certain unsatisfied expectations concerning HCP and high expectations in joining a patients’ organization.
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https://hal-normandie-univ.archives-ouvertes.fr/hal-02533639
Contributor : Sabine Douville <>
Submitted on : Monday, April 6, 2020 - 3:21:34 PM
Last modification on : Sunday, October 25, 2020 - 7:05:18 AM

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Jean-Marc Sabaté, Philippe Ducrotté, Thierry Piche, Frank Zerbib, M. Dapoigny, et al.. Expectations of IBS patients concerning disease and healthcare providers: Results of a prospective survey among members of a French patients’ association. Clinics and Research in Hepatology and Gastroenterology, Elsevier, 2020, ⟨10.1016/j.clinre.2020.02.014⟩. ⟨hal-02533639⟩

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